Here is the shortened, edited version of the letter I wrote to the national health ombud Office of Health Standards Compliance (OHSC) on 4 February 2019 motivating why they should take over the investigation of my mother's case (see elsewhere in this blog). The complete letter can be found here.
I wrote to them because the Health Professions Council of South Africa has not contacted me about their investigation into accused doctors more than a year after I laid complaints and after saying they would by December 2018 (see here).
The OHSC's mission and mandate is "ensuring quality and safety in healthcare" and "investigating complaints relating to the national health system". My late request for them to review the case and particularly Groote Schuur Hospital's and Western Cape Health Department's conduct and role comes after I copied them my last email to HPCSA on January 15 requesting an update to which the HPCSA still hasn't responded.
But I'm not hopeful. The OHSC's Stella Harzenberg informed me during a phone call on February 1 they are limited in what they can do, this despite having jurisdiction over the national health system. A curious situation. I'll post their response when I receive it.
To: Office of Health Standards
Compliance
Attention: Ms Stella Hartzenberg
4 February 2019
INQUIRY: GROOTE SCHUUR HOSPITAL & WESTERN CAPE HEALTH DEPARTMENT
I confirm our
phone conversation on Friday February 1.
Thank you for taking time to explain what you can and cannot do.
As I said,
copying you my emails to the Health Professions Council of South Africa (HPCSA),
which I’ve not heard from despite their promises to contact me in December
2018, was a long shot. We would
appreciate it if you can help resolve questions about my mother’s, Helen Johnson, care and death on 7 July 2017 at Groote Schuur Hospital that still
eludes us.
Reasons for approaching OHSC
Like LifeEsidimeni, this case illustrates the lack of accountability of healthcare
providers, dysfunction of the patient complaints process and dysfunction and apathy
of the investigative and regulatory organisation like HPCSA, National
Prosecutions Authority (NPA) and police.
We have no faith in them, let alone the deceitful culpable parties, the
hospital and Western Cape Government, its politicians, administrators and doctors
named herein who deliberately and with impunity violated the health laws and
are allowed to get away with it.
With respect, I
never had much hope in your office either and your cautionary advice about what
you can and cannot do does not give me confidence.
However, please
don’t speculate about my mother’s care and cause of death [see below] or make a decision without
reading all the documents including
medical and post-mortem reports, some of which you must request from Cape
Town’s Director of Public Prosecutions, Western Cape Forensic Pathology
Services and Western Cape Health Department (WCHD). The case numbers are given in
this letter. I’m attaching a compilation of my verbatim emails with the parties
and certain documents.
According to
pathologist Dr Gavin Kirk (12/07/2017), my mother died of “ischaemic
heart disease, chronic obstructive lung disease and anaemia, possibly
complicated by a fracture of the neck of the right femur”, after the life supporting breathing tube
was removed at 10:35pm on 7/07/2017. Until then, she was unconscious,
seriously ill but stable and “improving”, according to the senior attending
doctor, Mohammed Mayet, to whom my sister and I spoke that evening
between and 7 and 8.30pm.
Kirk said in a
follow-up email on 4/08/2017 responding to my extensive list of questions
(apparently, the hospital’s Prof. Andrew Nicol and Dr Bhavna Patel didn’t ask
him similar – see below) that she died of breathing difficulties which induced
heart failure after the tube was
removed, and although it’s hard to say, likely in pain. It was unlikely complications of the fall
(she fell at home at 7.00am on 6/07/2017 and admitted at 11:30am) – internal
bleeding – contributed to her death as little sign of bleeding around the
fracture was observed during the post-mortem.
So your
explanation on the telephone of a pulmonary embolism that caused her lung to
collapse is discounted [without the facts of the case and the first time we had spoken, Hartzenberg made this speculative medical conclusion]. (Before the post-mortem I asked Kirk inter alia to look
for anything that might have contributed to the lung collapsing including an
outside agent like a carelessly applied intubation tube which we suspected. Our
request and statements are in the forensic chain statements.) Anaemia was diagnosed and she received
treatment for it – two blood packs – but inexplicably it was discontinued
midday on July 7. Again as with other
matters, the hospital refused to give an explanation for that and the collapsed
lung.
In fact, except saying
she was old, had chronic heart and lung disease and the alleged impact of the
fall, neither Mayet, Trauma Centre head Prof. Andrew Nicol, hospital CEO
Bhavna Patel and head of the WCHD Beth Engelbrecht gave any information about the nature of her medical condition, except
vaguely and briefly on the morning of July 7, why they provided or withheld
treatment, the risks and benefits and alternatives including removing the
breathing tube and the exact circumstances of her death.
They also refused
to explain why they didn’t contact us and obtain our informed consent. All these are mandatory requirements of the
National Health Act. We were contacted
an hour and half after she died and had
been unaware of her (worsening) condition from about midday. Note doctors
told us that morning and rudely that evening not to make a nuisance of
ourselves in the ward despite visitors being allowed within reason at any time
of the day or night (normal visiting rules don’t apply in the Trauma and ER).
After initially agreeing
to do so, they – Nicol, partly Patel, Engelbrecht and finally Zille; I went up
the chain of command – refused to investigate. Their actions violated the
National Health Act including the right of healthcare users to lay complaints
and have it investigated (chapter 2, section 18).
You asked to whom
and when we complained. Note I am the family’s representative and acting on
their behalf. Here is the chronology. All communication was by email with
occasional phone calls. See attached compilation of emails.
Chronology of complaints
Summary of Chronology: 2017 - 2019
Date (of complaint)
|
Person/organisation
|
Action/Status
|
6/07/2017
|
Mrs Helen Joyce Johnson
|
Groote Schuur Hospital Trauma Centre Admitted: 11:30
|
7/07/2017
|
Groote Schuur Hospital. Helen Johnson deceased
|
Trauma Centre. Time
of death: 22:35
|
8/07/2017
|
Salt River Mortuary. Body transferred
|
Post-mortem 12/07/2017. Preliminary findings ex Dr Gavin
Kirk same day
|
9/07/2017
|
Prof. Andrew Nicol (UCT/GSH)
|
No action/refused to issue report
|
10/07/2017
|
Woodstock Police Station. CAS X/7/2017.
Automatic inquest docket
|
No action. Transferred to [another station].
|
3/08/2017
|
Dr Bhavna Patel (GSH)
|
No investigation/one-page letter. Closed
|
6/08/2017
|
Dr Beth Engelbrecht (WCHD)
|
No investigation. Cancelled
|
25/08/2017
|
Police Station. CAS X/07/2017. Inquest docket from Woodstock
|
Very limited investigation. Docket transferred to
Wynberg prosecutor, then back to DPP/Cape Town. Status unknown, presumed dismissed/closed
|
5/09/2017
|
Police Station. No Criminal charges. No case number
|
No criminal investigation. Docket transferred to
DPP. Declined to prosecute. Closed
|
20/09/2017
|
Health MEC Nomafrench Mbombo
|
No response at all. No action. Closed.
|
4/10 & 6/11/2017
|
HPCSA. Professional conduct complaints
|
Pending. Response by December 2018 lapsed. Dormant or closed
|
16/11/2017
|
Premier Helen Zille (WC Government)
|
Transferred to Jan Gerber. No investigation. Closed
|
23/11/2017
|
Adv. Jan Gerber
|
Superficial enquiries. No investigation. Closed
|
24/04/2018
|
Woodstock Police Station. CAS X/4/2018. Criminal
charges
|
Limited investigation. Status unknown, presumed dismissed/closed
|
15/01/2019
|
OHSC
|
Pending. Advised likely no investigation
|
In addition to these details, view my
related blog posts here, which is part of my testimony. I shall post this report in my blog
after a short delay for you to review the documents and report what, if
anything, you can do. Your decision shall become part of the record.
As can be seen in
the table below, except for Forensic Pathology Services (Salt River Mortuary),
which was very good despite at the time there been a worker strike, this list
displays a litany of “no action”, “no or limited investigation”, “cancelled”,
“case closed”, “declined”, “dismissed” and so on, all too familiar of the
country’s state agencies and the failure of service and in breach of the civil
contract citizens have with the state. Such failures and corruption are tacitly
condoned but the same officials – the corrupt and compromised – ask and expect people to be good citizens, the essence of new National Director of Public Prosecutions Adv. Shamila Batohi’s statement
on Friday February 1.
Among all these
individuals and agencies there was not even a minor attempt, never mind serious
one, to determine why my mother’s life support was removed without the family’s
knowledge and consent in violation of the health laws and as a result, her life
cut short. I’m aware that particularly among elderly patients it’s important to
remove intubation as soon as possible because they might never breathe without
it. But we were never contacted and
reasons given despite Dr Marcelle Crowther, the anaesthetist registrar on call
that night, writing in my mom’s medical file the family had to be
informed.
If fact, staff did not inform my sister, brother, niece and I when
we were at my mother’s bedside between 7 and 8.30pm that night. Instead, he was
rude, shouted at and told us to leave.
So we have no way of knowing if my mother might have recovered had the
tube remained for an extra few hours, a question Mayet after her death
evaded, pointing the finger of blame at junior doctors (he was the senior, his LinkedIn profile
stating he’s a “consultant” and “trauma surgeon”).
This indicates that medically assisted
euthanasia has become unofficial policy in South Africa’s public hospitals.
Ironically, the DPP
is prosecuting Prof. Sean Davison, founder and director of Dignity SA, for
allegedly assisting in the suicide of quadriplegic, Dr Anrich Burger in 2013.
Jurisdiction of OHSC
But without
pre-empting your decision which you will take upon careful review of all available information, I shall
motivate why you ought to take the case without necessarily duplicating work
already done.
The reason is
that the organisations where I lodged a complaint – Groote Schuur Hospital,
Western Cape Health Department, police with criminal complaints and HPCSA –
either did not conduct investigations or never started (hospital and WCHD) or
whose mandate is only to look at specific and narrow matters, e.g. inquest
investigation for cause of death (police, DPP and Inquest Court) and HPCSA for
professional conduct of individual members.
Furthermore, our
criminal and professional conduct charges relate to the accused as individuals in their personal capacity, not to their employer, an organisation like the
WCHD. Therefore, in the criminal and
HPCSA processes, they – hospital and WCHD – and their policies, e.g. removing
life support when patients are not brain dead and they have no express
permission to do so, cannot be charged and prosecuted, and if found to have
violated health and other laws and regulations, found culpable and sanctions
and remedies imposed. I’ve not heard of entity being prosecuted in South
African law, least of all a state entity.
You mentioned
financial compensation. That is not
our motivation in pursuing this but justice for my mother and family. [Neither I nor family raised this with any party including OHSC and we have not considered it. However, for her to mention it of her own accord indicates it's a consideration for regulators and particularly Western Cape Health Department in this and similar matters. Note South Africa's public health system faces large medical negligence legal claims and is in crisis due to "negligence, corruption and mismanagement". But rather than getting to the bottom of it, health minister Aaron Motsoaledi delusionally believes it's due to fraud.]
Inquests: According
to the Inquests Act 58 of 1959, an inquest may be instituted at the discretion
of the prosecutor to establish the cause of death when there is suspected
unnatural causes. My mother’s death was formally ruled “unnatural causes”
because she fell at home. That was not the cause of her death, though, which
was precipitated by her existing medical condition and weakened state after she
fell, and diagnosed but untreated anaemia.
The single
significant contributory factor was an outside agent – the doctor prematurely
removing – for now, we’ll leave why he did so but that must be considered at a
hearing – the breathing tube that according to the pathologist, caused “breathing
difficulties” and the fatal cardiac event.
However, the DPP
declined to prosecute our criminal charges, ergo, the cause of death was not
unnatural and no inquest is required.
(Note he referred the case to an inquest in April 2018 but refused to
explain the contradiction, no doubt because he had no rational explanation. This must have being a reason why Wynberg’s
prosecutor declined the case for “problems” and sent it back. I submit political considerations are among
the reasons he declined to prosecute.)
That leaves the
Western Cape Health Department, the first and perhaps only one in mind when you
asked to whom I complained. Theoretically, the Independent Health Complaints
Committee is supposed to perform the function of investigating complaints of
poor healthcare in the province’s public health service. (Incidentally, it’s
not independent as it exists entirely at the whim of the head of department who
is the only one mandated by its
founding provincial act to refer complaints to it. As such, it’s her tame
poodle and has little credibility.)
When the then
health MEC Theuns Botha first proposed the IHCC, I wrote to him and a letter to
the Cape Argus stating the problems I mention here – primarily its lack of
independence – it cannot independently decide for itself which complaints to
adjudicate as the OHSC and all ombudsmen do. His personal assistant phoned
boasting it was the only such (provincial) body in the country but failed to refute
my questions. The original bill was withdrawn due to legal technicalities and finally
passed in 2014 to fulsome, self-congratulatory fanfare from Zille’s government. I would like to see the IHCC Act challenged
because it’s inconsistent with the National Health Act.
But the IHCC’s and
its operations are opaque and under the radar.
And complaints about poor patient care continue, e.g. here,
here
and here.
In its newsletter
on 28/06/2018 the Treatment Action Campaign (TAC) said “The Western Cape health
system is failing the people who rely on it”. However, Zille and the DA
government insist the province’s public health system is very good with an alleged
enviable record (the South African Health Review 2016 places it third last with
a user satisfaction rating of 53% compared to a national average of 58%).
If the healthcare
system and IHCC is working as they should, why is there so much dissatisfaction
among users? Surely, all of them cannot be mistaken about their experience? But
as I wrote in my blog
on 11/12/2017, the IHCC is dysfunctional as proven by Engelbrecht’s claim it
had logistical, i.e. organisational and resource, problems which she spuriously
gave for not investigating our complaint.
Therefore, since
the WCHD/government/premier/IHCC refused to and did not investigate our
complaint (Engelbrecht suggested the public protector, SAHRC and presumably OHSC
but the first two are not competent to review medical matters), it leaves only
you to do so in the absence of action or investigation from other agencies and
the fact criminal and professional conduct complaints concern people in their
personal capacities, not systemic organisational failures, e.g. Life
Esidimeni. Naturally, by investigating
the organisation, their implicated employees’ conduct shall fall under the spotlight
too.
The OHSC’s
mission is “ensuring quality and safety in healthcare” and “investigating
complaints relating to the national health system”, i.e. ensuring the intent
and provisions of the National Health Act are adhered to in its entirety. The accused mentioned herein believe they
have the personal choice whether or
not to abide by the letter and spirit of the Act and other health laws, e.g.
Health Professions Act’s Ethical Rules and Conduct for Practitioners especially
section 27A, main responsibilities of health practitioners. They – Nicol, Patel, Engelbrecht, Zille
(Mbombo was silent, a cipher during it all) et al – were blatant about it
too.
While one of the doctor's conduct was abusive, arrogant and
insulting, I don’t know if he and the other doctors are simply ignorant of the
laws and health guidelines. They shouldn’t be, but it happens. But that doesn’t excuse Nicol et al who as senior
doctors particularly are mentors who ought to guide trainees and juniors in
best medical and ethical practice. Unfortunately,
ethics and morality are not valued traits in this country.
And displaying a
worrying lack of knowledge and understanding of medical law that I experienced
in a previous [professional conduct to HPCSA and criminal] complaint in 2001 and 2002 (Christopher Hobbs), the DPP stated in a letter
to me that it’s Engelbrecht’s prerogative to ignore health laws (sic). This
attitude by regulators, and arguably the most important one, NPA, of turning
a blind eye to illegality is why the public have no confidence in them and why
I shall not deal with them again.
I urge you not to
take a technical, legalistic interpretation of your mandate. Had that happened you might not have accepted
Life Esidimeni, which I accept you had no choice about due to its social,
medical and political magnitude. I’m not
saying my mother’s case is anywhere near that but we also experienced lies, obfuscation,
obstruction and the facilitation of criminal conduct from individuals and their
organisations we accused in various complaints and this report.
I experienced the
same in 2001 and 2002 from much the same people in the Hobbs case (see here).
They too were allowed to get away with it because the police, HPCSA and DPP
failed to do their jobs due to indifference, and as in this case, likely political
considerations and interference.
It has been
difficult, and while I have no expectation or false hope you will take the
case, the least I can do is argue and motivate why you should. Theoretically,
nothing prevents you from investigation the institutional aspect – Groote
Schuur’s and WCHD’s failures, excesses and abuses – which the others didn’t do
because it fell outside their scope and due to political reasons, and take the product of their partially
complete and incomplete investigations and build on it. If you and they can’t or won’t, who will? It
indicates a flaw in the national patient complaints review process.
I'm attaching the
email thread and Engelbrecht’s letter
dated 19/09/2017.
Thomas Johnson
[End]
Minor edits, updates and clarifying annotations added.
My mother lies in a, bed at Groote schuur ward F17 and we have had the most tormenting time. Doctors don't have time to answer any questions or tell you its under discussion or it's not their department and walk away. One even turned his back on me mid sentence. Drips are put up and not checked to see that they are in fact working properly. There is no respect, no accountability and constant discussions with my mother deteriating on a daily basis and been told we doing what we can. We understand your frustration. It's not frustration, it's desperation. It's needing a good diagnostic Dr, medical staff that want to be there. There is such an indifferent attitude and lack of interest or support. If I could wheel my mother out of the place I would.
ReplyDeleteUnknown, I sympathise. Unfortunately, reports like these are common. (However, anecdotally, others have good experiences at Groote Schuur, which leaves one to conclude their healthcare service is inconsistent at best and poor at worst.)
DeleteIn terms of the health law (National Health Act and Health Professions Act) and medical codes of conduct, healthcare practitioners MUST communicate with patients and families. It's called "informed consent". That they're not is stupefying, and neither the hospital's CEO, heads of department, Western Cape Health Department nor their political heads at the WC government really care (they say they do). Best of luck complaining to them.
But when dealing with situations like you describe, now and in future, don't take no for an answer and DEMAND ones from the head doctor on duty, head of department, or if that fails, CEO Dr Bhavna Patel. Her number and email is on the Internet.